Van Alexzander's

Well Van hasnt had any lesions in the past 3 weeks or so, so we are happy about that. He has had a few break outs but no pits in the skin as of lately. He got really sick for awhile and we are happy to report that he is back to his wild little self. He has begun saying sentences and putting very orginal thoughts together. currently he has quite the black eye poor thing. he was riding with his sister on a four wheeler and she slammed on the breaks and his face hit the handle bars. he cried more that i took him inside to check it out than he did for it hurting. he is one tough little guy for sure. I wanted to say thank you to Kimber and Nai which have really been there for our family lately and I am so happy to have found her. She was a childhood friend from high school that we just recently reconnected. She too has a special needs child and has been a true kindred spirit. I would also like to thank Carrie because she is going to help us get the word spread a bit more about cmtc. We hope that one day a doctor will be able to look at a child and know what they are looking at. we hope that they will be able to properly educate the parents of the potiental risk of cmtc and not depend on the google system and out dated information. We hope that if not for my child but my children's children that one day we can explore new discoveries and have a USA based CMTC center for the children in the united states. God bless you all. We so appreciate your prayers. we know that your prayers are what have gotten us this far. all our love

Lisa